Category Archives: Families

Happy Birthday Jazmin!

Happy Birthday Jazmin!

JazminIs there any better time to open your own JoyJar than on your birthday?!?! Last week, we had the opportunity to make a special delivery to courageous kid Jazmin, who recently celebrated her 5th birthday!

We are so honored to be able to bring Jazmin some fun, joy and love from our JoyFactory. This year Jazmin is celebrating much more than 5 years..this year Jazmin is celebrating that she has beat medulloblastoma after her courageous fight since the age of 3..Jazmin is now..cancer free!

Jazmin, we celebrate with you and are so inspired by your courageous, strength and your determination to Never Ever Give Up! We can’t wait to see all the amazing things in store for you in the coming years…. and we will NEGU for you!

Do you know of a courageous kid celebrating a birthday soon? You can request their own birthday JoyJar too! You can do so here–JoyJar Requests

 

NEGU Team Captain Kurt!

NEGU Team Captain, Kurt!

High school football teams all over Orange County are suiting up for their annual homecoming game. The Capistrano Valley High School Cougars celebrated this special week with lots of school spirit, a fun rally and a great game against Dana Hills High School.

NEGU Team Captain KurtThis year, the Capistrano Valley football team, welcomed their newest team member to the roster this week, 9-year old courageous fighter Kurt! Kurt, a Yorba Linda resident, joined the Capo Valley team all week in preparation for their big game. In fact, Kurt played such a big role in the team’s game-day preparations, that he was named Honorary Team Captain for the week! Joining the team at their pre-game dinner, helping at practice and standing side-by-side with the team on game day, Kurt was instrumental in making sure his team was well prepared for their special game.

Kurt is currently in the remission stage of his fight with leukemia and he will never ever give up! if you would like to send NEGU Team Captain Kurt a message of encouragement, please do so on his facebook support page  Kourageous Kurt! NEGU Kurt

A big thank you to courageous fighter Kurt for all of his hard work in serving as his role of NEGU Team Captain for the Capo Valley Cougars. And a big thank you to the Capistrano Valley High School football team for welcoming Kurt in as part of your own, and for giving him this one-of-a-kind, special opportunity to put leukemia aside for a while and to do something fun!

If your school would like to host a NEGU Team Captain, please email our Special Connections Coordinator, Cheryl Ingraham, at cheryl@jessie.org

 

Capes for Heroes

Capes 4 HeroesIf you walk into a children’s hospital today, you may see some super heroes roaming the halls. These pint-sized heroes are courageous kids by night and super characters by day, thanks to the amazing work of Capes4Heroes!

Capes4Heroes delivers superhero capes for kids with disabilities and/or life threatening illnesses to help give them a boost of encouragement, strength and of course, lots of fun! These superhero capes are funded by donors and are offered to kids at no financial obligation. 

capes

Capes4Heroes® was created four years ago when Barbara Casados’s autistic son Maddox refused to wear anything but a superhero cape. Quickly, Barbara bought a sewing machine and taught herself how to sew and made lots of different capes for Maddox. It wasn’t long before other parents at Maddox’s special needs school saw the impact the superhero capes had on him and asked Barbara to make capes for their kids.  Wanting to help other kids in need to feel empowered, Barbara put together a team of seamstresses and began making superhero capes for children all over the county! To-date, Capes4heroes have delivered over 1,500 capes!

Do you think your child could use a superhero cape for courage? Head over to www.capes4heroes.com to nominate your hero!

 


#MyNEGUKid Photo Contest

A NEGU Kid is a courageous kid fighting cancer. They are brave. They are strong. They are amazing. “Their brilliance challenges the darkness and dazzles those of us who watch their light.”

We want to highlight some amazing NEGU Kids! From August 2, 2013 until August 11th 2013, we want to see your #MyNEGUKid photos for a chance to win one of our brand-new ‘I’m a NEGU Kid!‘ t-shirts!

#MyNEGUKid-01
Here’s How it Works:
  • Choose Your Photo: Find your favorite photo of your courageous fighter. It can be a selfie, you and your NEGU Kid, or anything fun! Be as creative as you’d like!!
  • Share and Encourage: Jessie knew cancer could make you feel alone… we want these amazing kids to know they’re not!! So retweet, like, comment, share, and +1 your favorite photos! Just search #MyNEGUKid on your favorite social media sites.

I'm a NEGU Kid Shirts

 

 

 

The Winner: On Monday, August 12th, 2013, one NEGU Kid photo posted during the past week using #MyNEGUKid will be chosen at random. The winner will receive an exclusive tie-dye  “I’m a NEGU Kid!” t-shirt and NEGU bracelets to show off their Never Ever Give Up spirit!

 

So tell us what makes your courageous fighter a NEGU Kid!!

T-Shirts For Courageous Children Fighting Cancer | I’m a NEGU Kid

Childhood Cancer T-ShirtsThe Jessie Rees Foundation has ONE mission- encourage every child with cancer to Never Ever Give UpBuilding a special relationship with families affected by childhood cancer has been a goal of Jessie’s family and her foundation since inception. Knowing first hand the many struggles families face while caring for a child with cancer, the Jessie Rees Foundation continues to seek new opportunities to ‘care’ for children and their families affected by childhood cancer until there is ‘cure’—opportunities to ease the burden, lift spirits and spread more JOY.

In an effort to fulfill Jessie’s wish of encourage kids fighting cancer around the world, we are blessed to have the opportunity to send every child fighting cancer one of our new I’m A NEGU Kid  t-shirts as a gift. These are available to any child fighting cancer under the age of 18. To request one of these limited edition “I’m a NEGU Kid” t-shirts for your courageous child fighting cancer please complete the form on our families page here . Please note these ship from the JoyFactory and will take 2-3 weeks to arrive. The t-shirts are 100% cotton and are not pre-shrunk.

Cancer Support Shirts

Also available for our countless supporters and followers, is our super cool “Team NEGU” shirts! If you want to join us in supporting courageous kids fighting cancer, you won’t want to pass up the opportunity to sport your own “Team NEGU” T-shirt.

As a thank you for each $25 donation to the Jessie Rees Foundation, you will receive one Black Team NEGU T-shirt. If you are requesting 25 or more T-shirts, you will receive a discount of $10 per shirt. (That’s 25 shirts for a $375 donation!! Join our team NEGU community and help support the Jessie Rees Foundation as we work to empower kids fighting cancer to Never Ever Give Up. The TEAM NEGU t-shirt is a 100% cotton, heavy weight shirt silk screened.

JoyJars Are Not The End, But The Beginning of a Relationship

At the 2nd annual NEGU Gala, Erik Rees,Jessie’s daddy, spoke to courageous families caring for a child fighter cancer, JoyJars are not the end, but the beginning of a relationship of love, support, and encouragement”. Building that special relationship with families affected by childhood cancer has been a goal of Jessie’s family and her foundation since inception. Knowing first hand the many struggles families face while caring for a child fighting cancer, Jessie’s family and her foundation continue to seek new opportunities to ‘care’ for kids and their families until there is ‘cure’—opportunities to ease the burden, lift spirits and spread more JOY.

kids fighting cancerIn addition to Jessie’s JoyJars, there are a number of ways that Jessie’s wish of providing love, joy and encouragement for kids fighting cancer continues. One of these special opportunities is the option for parents to request a portrait sketch for their courageous child fighting cancer. Memories are precious to all of us and these beautiful sketches are just one more way that we can send a little JOY to a family who is going through so much. These amazing pieces of art are offered to courageous families caring for a child fighting cancer at no financial obligation—thanks to a wonderful, compassionate volunteer.

3 year old, Ms. Natalie Grace is a recipient of a NEGU portrait sketch (seen above). Natalie is one of our very courageous fighters and she is so strong and brave. Head over to her Facebook page, Infinite Love for Natalie Grace, and see what she’s doing to raise awareness and funds for childhood cancer research. She may be little but she is doing BIG things!! Natalie, we NEGU for you!

If you are interested in receiving a portrait sketch for your courageous fighter, please email Jana, our Family Resource Coordinator, at jana@jessie.org.

*At this time, portrait sketches are only available to parents who are caring for a child fighting cancer under the age of 18. Shipping only available within the US.

 

 

 

Acute Myeloid Leukemia- We Never Ever Give Up For Courageous Kids

The Jessie Rees Foundation offers an abundance of resources and support for children fighting acute myeloid leukemia and other childhood cancers. Knowing the many struggles that come along with caring for your child fighting acute myeloid leukemia, our goal is to ensure you have helpful and supportive information at your fingertips so that you can spend less time searching and more time caring for your courageous fighter. Here are some things you might find helpful at negu.org:

1) Meet Jessie, learn about her journey, her mission, her wish and her legacy.

 

2) Visit our NEGU Support Network to locate children’s hospitals, Ronald McDonald Houses and other organizations dedicated to serving children and families fighting cancer.

3) Nominate your courageous fighter for our NEGU Kid of the week. Our NEGU kids are introduced to our facebook fans and are sent LOTS of messages of encouragement and love.

4) Request a JoyJar for your courageous fighter against acute myeloid leukemia. JoyJars are colorful andGifts for Kids Fighting Cancer inspirational jars filled with hospital-approved toys and games that are sent to children fighting cancer around the world (sent at no financial obligation to children fighting cancer).

5) Visit our NEGU Kids website to find fun activities, games and printables for your courageous fighter.

 

6) Request one of our special “I’m a NEGU Kid” t-shirts to help encourage your courageous fighter to Never Ever Give Up!

 

 

 

Dear Parents,

 

I want you to know the Jessie Rees Foundation is here for YOU and your courageous child. Stacey Jessie Rees with her parentsand I know first-hand what it feels like to be told your child has cancer, search for treatments around the world, watch bills pile up, try to manage your other kids, keep your job going, pray for a miracle, try new foods, sit at chemo, wait for radiation to get over, attend MRI …the list goes on.

 

NO child or parent should have to go through what we have, but they do, so we HELP.

 

We hope the Jessie Rees Foundation and the NEGU Family Network can help you. Please visit us at www.families.negu.org.

 

 

 

 

Financial Support Charities For Children With Cancer

At the Jessie Rees Foundation, we truly believe that we are better together. Together, with other charities, we can provide resources and support to children and families fighting cancer, together we can help bring awareness to pediatric cancer and together we can find a cure. There are some wonderful financial support charities around the country dedicated to serving children with cancer and their families. We have compiled a comprehensive list of charities dedicated to providing financial assistance and/or support to families with a child fighting cancer.

Although the charities listed below are not affiliated with the Jessie Rees Foundation, our hope is that you may find these organizations helpful.

ADDISON JO BLAIR FOUNDATION

270-734-1479
The foundation provides grants to minimize the financial hardship that is directly attributed to the child’s illness.

ANGELS OF HOPE

586- 226-3146
Provides financial assistance to children and those who love and care for them as they battle cancer.

AVA’S GIFT TO JUNE

Helps families who have children fighting cancer by helping pay medical bills, travel expenses, and other costs associated with the treatment of childhood cancer.
 

B+ ORGANIZATION

302-563-8389
The B+ Foundation is committed to emotionally, and financially assistfamilies of children with cancer. so they can focus on helping their children get well.

BEYOND THE CURE SCHOLARSHIP PROGRAM

314-241-1600
Awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation.

CANCER FINANCIAL ASSISTANCE COALITION

CFAC is a coalition of organizations helping cancer patients manage their financial challenges.
 

CANCER FUND OF AMERICA

1-800-578-5284
A non-profit organization set up under the Internal Revenue Service code 501 (c) (3) to provide aid to cancer patients, hospices, health care providers, and other non-profit organizations that assist the poor and less fortunate in times of illness by sending much needed products free of charge.

CANCER SURVIVOR’S FUND

281-437-7142
Provides emotional support, and motivates young cancer survivors and channels their thoughts and dreams to a healthy and productive future.

COLORS FOR A CAUSE

337-794-4308
Helps families as they battle cancer by providing financial assistance for mortgage/rent, utilities, travel expenses for medical treatment.
 

EMILY’S KIDS FOUNDATION

Provides charitable contributions that directly benefit families with children who have cancer.

FIGHT LIKE PAXTON

Provides support, love, and encouragement while lifting the financial burden for families fighting childhood cancer.

FREEGASUSA

Welcome to Free Gas USA Inc. We are the nation’s preeminent nonprofit gasoline grant assistance provider.
 

FRIENDS OF SANTA CLAUS

Gives financial and emotional support to children with cancer and their families.

FRIENDS OF SCOTT

619.223.7268
The Friends of Scott Foundation’s (FSF) mission is to help children with cancer and their families. We ensure they receive the emotional and financial support needed to cope with this devastating disease.

HAPPY CHEMO

(801) 388-1699
Our Mission is to ease the fear, frustration and financial burden associated with cancer by connecting survivors and caregivers to products, services and resources provided by qualified local and national partners.
 

ISAIAH ALONSO FOUNDATION

(270) 300-5329
One of the objectives of The Isaiah Alonso Foundation is to financially assist deserving families of oncology patients. The Foundation provides grants to minimize the financial hardship that is directly attributable to the child’s illness.

JAKE OWEN RABORN FOUNDATION

888-356-5253
Provides financial support to families enduring pediatric cancer.

JESSICA JUNE CHILDREN’S CANCER FOUNDATION

954-712-6322
The mission of the Jessica June Children’s Cancer Foundation is to provide emergency financial assistance for children fighting cancer to ensure access to basic human necessities.
 

JOEY POWERS LEUKEMIA PROJECT

727 647-9336
Offers grants up to 500 for household expenses, medical bills for families dealing with pediatric cancer.

JOLEE BOARDER FOUNDATION

Provides assistance to eligible families of children battling pediatric cancer.

KACEY ROSE FOUNDATION

(203)439-0035
Our mission is to provide assistance to families affected by childhood cancer and blood disorders requiring stem cell transplant and to promote umbilical cord blood donation.
 

KATELYN KARES

Assists with the financial burden placed on families who are caring for a child with a life threatening illness.

KELLY HEIN

570-544-6870
Holds fundraisers and gives back 100% of the profits to families in need.

KISSES FOR KYLE

267-210-1489
Offer gift cards from local merchants, including supermarkets, gas stations, telephone services, restaurants, hair salons and more.
 

ME FINE FOUNDATION

919-202-0086
Provides necessary resources and financial assistance to parents and caregivers with children being treated at Duke and UNC Children’s Hospitals.

NATIONAL CHILDREN’S CANCER CARE SOCIETY

314-241-1600
We ease the financial burdens that accompany major illness, give crucial support and address the challenges of survivorship.

NATIONAL CHILDREN’S LEUKEMIA FOUNDATION

800-Give-Hope
Helps families of children with cancer, Leukemia and other blood disorders by assisting with expenses for transportation and medical care. The NCLF also assists families living outside of the United States by providing transportation to centers where chil
 

NATIONAL COLLEGIATE CANCER FUND

240-515-6262
Committed to providing need-based financial support to young adult survivors who are pursuing higher education throughout their treatment and beyond.

NEEDYMEDS

978-281-6666
Devoted to helping people in need find assistance programs to help them afford their medications and costs related to health care.

NELLIE’S CATWALK FOR KIDS

800-859-9183
Provides gas cards, meals, rent/mortgage support, family outings, care packages, crafts, and the list goes on!
 

ONE MISSION

508-272-6677
One Mission issues funding to programs that provide a safety net for families by helping them with the basic necessities that fall outside the scope of health care.

PEDIATRIC BRAIN TUMOR FOUNDATION

800-253-6530
Provides scholarships for brain tumor survivors to attend vocational schools, community colleges and universities across the United States.

REFLECTIONS OF GRACE

Provides financial, emotional, and educational support for the families of children affected by pediatric brain cancer.
 

SADIES DREAM FOR A CURE

Provides financial support for families in crisis following a pediatric cancer diagnosis.

SMILES FOR SOPHIE FOREVER

216-346-0913
Provides financial support to those families burdened by pediatric brain tumors.

SUPPORT THE KID

631-339-0304
Helps families pay for the cost of experimental cancer treatments, resources for travel to these treatments and any meals or lodging needed while receiving them.
 

TEAM CONTINUUM

917-595-4184
Provides immediate and vital non-medical assistance to cancer patients and their families when the diagnosis results in disruption, hardship and uncertainty in their everyday lives.

THE BONE MARROW FOUNDATION

212-838-3029
The Bone Marrow Foundation offers financial assistance and free support services to bone marrow/stem cell transplant patients and their families.

THE NATIONAL CHILDREN’S CANCER SOCIETY (POP)

314-241-1600
They ease the financial burdens that accompany major illness, give crucial support and address the challenges of survivorship.
 

UNITED CANCER ADVOCACY ACTION NETWORK

(805)479-1032
We provide financial assistance to cancer patients/survivors in the Tri-County areas of Los Angeles, Ventura County & Santa Barbara Counties and as we grow, we will expand that area.

 

Find Cancer Support in My Area For My Child

Here at the Jessie Rees Foundation, we understand that when a child is diagnosed with cancer, it is sometimes a difficult task for parents to find resources, support, hospitals and other organizations close to home or at your child’s place of treatment. Our goal is to help alleviate some of the external stressors that come along with caring for a child with cancer, by allowing parents to spend less time searching and more time focusing on their child and family.

The Jessie Rees Foundation’s NEGU Support Network offers parents quick and easy access to locate Ronald McDonald Houses, Children’s Hospitals, National Resources and local retailers offering discounts for families with a child fighting cancer.

Check out our newly launched NEGU Support Network

Support for Kids With Cancer

Dear Parents,Jessie Rees with her parents

I want you to know the Jessie Rees Foundation is here for YOU and your courageous child. Stacey and I know first-hand what it feels like to be told your child has cancer, search for treatments around the world, watch bills pile up, try to manage your other kids, keep your job going, pray for a miracle, try new foods, sit at chemo, wait for radiation to get over, attend MRI …the list goes on.

NO child or parent should have to go through what we have, but they do, so we HELP.

We hope the Jessie Rees Foundation and the NEGU Family Network can help you. I

NEGU,
Erik & Stacey Rees

Diffuse Intrinsic Pontine Glioma (DIPG) Support for Children and Families

The Jessie Rees Foundation is dedicated to supporting children and families fighting Diffuse Intrinsic Pontine Glioma (DIPG) and other childhood cancers. Knowing the many additional struggles you may be facing while caring for your child fighting DIPG, our goal is to help to provide you with resources, information and support during this very difficult time.

Here are some things that you might find helpful at the Jessie Rees Foundation:

1) Request a JoyJar for your courageous fighter against DIPG. JoyJars are colorful andGifts for Kids Fighting Cancer inspirational jars filled with hospital-approved toys and games that are sent to children fighting cancer around the world (sent at no financial obligation to children fighting cancer).

2) Visit our NEGU Support Network to locate children’s hospitals, Ronald McDonald Houses and other organizations dedicated to serving children and families fighting cancer.

3) Request one of our special “I’m a NEGU Kid” t-shirts to help encourage your courageous fighter to Never Ever Give Up!

4) Visit our NEGU Kids website to find fun activities, games and printables for your courageous fighter.

5) Nominate your courageous fighter for our NEGU Kid of the week. Our NEGU kids are introduced to our facebook fans and are sent LOTS of messages of encouragement and love.

6) Meet Jessie, learn about her journey, her mission, her wish and her legacy.

Dear Parents,

I want you to know the Jessie Rees Foundation is here for YOU and your courageous child. Stacey Jessie Rees with her parentsand I know first-hand what it feels like to be told your child has cancer, search for treatments around the world, watch bills pile up, try to manage your other kids, keep your job going, pray for a miracle, try new foods, sit at chemo, wait for radiation to get over, attend MRI …the list goes on.

NO child or parent should have to go through what we have, but they do, so we HELP.

We hope the Jessie Rees Foundation and the NEGU Family Network can help you. Please visit us at www.families.negu.org.

NEGU,
Erik & Stacey Rees