We are honored to introduce our fans and followers to our super strong NEGU hero Dylan! Dylan is 10 years old and is courageously fighting Ewing’s Sarcoma.

Dylan tells us that NEGU means to him, “that I can’t and won’t Ever Give Up!“. Knowing he is not the only child fighting cancer, he has strength in knowing that WE can beat it and WE have to do everything we can to get other people to fight hard for a cure.

Dylan is undergoing VIDE aggressive chemo for 6 weeks, proton radiation and has undergone 14 rounds of chemotherapy since September of 2012.

Dylan tells us that his family and friends are most important to him. Some of his favorite activities are singing and dancing. Never Say Never, Dylan says, is his song!

Dylan also loves fishing, riding bikes and riding his quad.

Dylan tells us, “Being a kid right now is very hard to do, but I try my best to not let cancer control my childhood. My mom says I am still a kid but fighting a man’s fight and winning” 

We asked Dylan about his personal heros. He actually has quite a few–Dylan tells us that every child fighting cancer is his hero “Every child I see who is going through what I am going through and beating it—going through the tough times and still are happy and NEGU like me”-Dylan. He points out that Mark Herzlik, of the NY Giants is a hero of his, as he also fought Ewing’s Sarcoma

Dylan’s favorite color is purple.

Dylan wants you to know that, “I am a normal 10 yr old boy and you don’t need to baby me. If I fall, let ME get back up, cause I will. I want to find a way to do something about curing childhood cancer. I know that it’s going to be hard but we need to because its everywhere, and it’s not fair.  Also I’m really no different than a non-sick kid, so what I don’t have hair it will grow back, please don’t think I will give you cancer, I can’t.

 I am super strong and I will beat this and will become a marine and fight for our country. I’m scared sometimes, but I have a family who have done so much for me and my brothers and sisters. I would love to help in what Jessie has started she is a INSPIRATION for sure no doubt”. 

WE NEGU FOR DYLAN!!!

You can visit Dylan at Dylan Super Strong Purple Warriors Against Ewing Sarcoma

We are so honored to introduce to our Jessie Rees Foundation community our courageous NEGU fighter Brock! Brock courageously fought a malignant brain tumor called germinoma. This is Brock’s courageous journey:

“My name is Brock and I am 16 year old cancer survivor. The summer of 2012 was not a good time for me. I had severe headaches and blurry vision. Multiple appointments to my pediatrician and eye doctor didn’t give us any answers. Finally, in October a new eye doctor was able to see that I had severe optic nerve swelling and that my eyes weren’t tracking properly. He sent us immediately to our local emergency room where we found out I had a 3cm mass within my brain, which caused a lot of pressure to build up in my head. I was sent by ambulance to a children’s hospital two and a half hours away. The next morning I was in surgery for a VP shunt to relieve all that pressure in my head.

Introducing our Super Racer, NEGU fighter Tucker! Tucker is 6 years old and courageously fighting Acute Lymphocytic Leukemia. During his 3 1/2 year treatment plan, NEGU has been a great morale booster for Tucker, especially on the days he needed that little extra voice of encouragement to keep fighting. Tucker received one of Jessie’s JoyJars and loves wearing his “I’m a NEGU Kid” t-shirt to school.

Tucker would like the world to know that he really enjoys school and is doing very well. Someday, Tucker would like to work in a NASCAR pit crew as his a BIG NASCAR fan! Tucker loves cars, and riding his NASCAR themed bike. He also enjoys playing on his trampoline with his brother Riley and playing racing games on his XBOX.

Tucker’s favorite colors are white and black–the colors of the checkered finish line flag–symbolizing that the race is complete! His personal heros are Jeff Gordon, Carl Edwards, Danica Patrick and his Papaw James—all great race car drivers!
If you would like to visit our super racer NEGU fighter Tucker, you can visit him at:
Facebook page:  racing2remission
Caring bridge: tuckersalyer

We NEGU for Tucker!

Meet our warrior Princess, NEGU fighter Karen! Karen is 4 years old and courageously fighting Non-Hodgkins T-Cell Lymphoblastic Lymphoma.

Karen’s mom tell us that NEGU means to her, “Never Ever Give Up..It’s all I have, it’s all I can do to hold on to my little girl. Jessie helped us understand that we are all one big family and that all of our missions should include trying to help and comfort others, while at the same time bringing awareness to childhood cancers.”

Karen loves Hello Kitty, the Disney princesses and the group One Direction. She loves to sing and dance, ballet and tap. After treatment, Karen has returned to her dance class!

Karen’s favorite color is pink .

“Karen has a great love and devotion for Our Lady of Guadalupe. Whenever we are at the hospital she asks to go into the hospital’s chapel where she sings Our Lady of Guadalupe. Karen is my hero and inspiration. She is such a strong little girl. There are days we come home from chemo and all she wants to do is sing and dance. We are so blessed. Even though there are certain aspects that still scare her a great deal, Karen still makes the best of the situation. Her strenght inspires me”- Karen’s mom.

Facebook page: Karen’s Fight

Caring bridge:  Karen’s Fight

We could not be more excited to introduce our fans to one of our amazing, courageous NEGU fighters Ethan! Ethan is 5 years old and just started maintenance treatment for Acute Lymphoblastic Leukemia

Ethan tells us that NEGU to him simply means don’t give up. Ethan says that some of his treatments made him feel kind of yucky, but knew they would help him get better. “When I don’t give up, sometimes I get to go to Target and pick out a toy”.

Ethan would like the world to know that “I have leukemia, and sometimes I can’t be around a lot of people–sometimes that’s hard. I don’t like wearing a mask but I’m getting stronger”- Ethan

Ethan’s favorite food is pizza  and he loves toys–and shopping for more toys =) Ethan tells us that he enjoys going to church and loves seeing his friends. Before treatment he used to play soccer, but now he may like to switch to baseball. Ethan’s heros are superman and his best friends Emery and Davey. Ethan’s favorite color is blue.

If you would like to visit our courageous NEGU fighter Ethan you can visit his facebook fan page.

We are so honored to share with our fans and followers one of our amazing NEGU fighters, Conner! Conner is 4 years old and fighting Ewing’s Sarcoma hard with determination and resiliency.
Conner is an Air Force child, his mom tells us, so its no wonder he was born with a fighting spirit and has rallied his community behind him on Conner’s Crusade! Conner’s mom also tells us that he was a miracle baby from the start. When Conner’s parents married and had their first two children, they thought their family was complete. 10 years later, baby Conner arrived. Conner is the family blessing and has allowed his siblings and parents to know true unconditional love.

While in chemotherapy treatment and surgery at his local children’s hospital, Conner received Jessie’s JoyJars and note of encouragement. This definitely put a smile on his face.

Conner loves soccer, bowling, airplanes and his favorite colors are blue, red and purple. His heros are his dad and brother.

You can join Conner’s Crusade at his facebook fan page.

We NEGU for you Conner!

We are very excited to introduce our friends, fans and followers to one of our 2013 NEGU fighters, Christopher! Christopher is 11 years old and is courageously fighting acute lymphoblastic leukemia. While in chemotherapy treatment, Christopher says NEGU reminds him everyday that he IS going to beat cancer. Knowing he has a support system and community behind him, Christopher says he knows he is not alone.

Christopher says his all-time favorite heros are his oncology doctors. The Los Angeles Dodgers are also amongst his favorites alongside his black lab and of course, his family.

Christopher loves playing soccer, video games, riding bikes and traveling.

Christopher would like the world to know that fighting cancer is the hardest thing he has ever done in his life, and he has become a stronger person because of the journey he has traveled.

We NEGU for you Christopher!

We are so honored to introduce our readers to our courageous NEGU fighter, Peter! Peter is 9 years old and is ever so bravely fighting a relapse of Acute Lymphoblastic Leukemia (ALL)

Peter and his family believe strongly in the Jessie’s NEGU message. Despite being told by others to give up, Peter and his family embrace NEGU everyday and choose to Never Ever Give Up.

Peter’s family wants the world to know that Peter is the funniest, naughtiest and most mischievous boy in the universe. He loves being naughty and making people laugh. Pete loves dancing, dressing up and reading books. Some of his all time favorites–Wolves, dogs, films about dogs, the Wiggles and CHRISTMAS!

Speaking of Christmas, Peter’s mom tells us that Santa Claus is Peter’s all time favorite hero and he is counting down the days until Christmas!

Pete is currently learning to ride a horse and also participates in a school club that offers Maori war  dancing and singing.

You can visit our courageous NEGU fighter Peter at

http://www.facebook.com/pages/Peter-Pirie-space-ranger/14160988935085

http://www.caringbridge.org/visit/peterpirie

We Never Ever Give Up for Peter and all kids fighting cancer.